Living well after cancer


Adjusting to life after treatment

Page last updated: November 2024

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Cancer survivorship

Improvements in diagnosing and treating cancer mean that more people are surviving and living with cancer. More than 1.2 million people living in Australia today have been diagnosed with cancer during their lifetime. 

Am I a cancer survivor?

The term “cancer survivor” is used to describe a person from the time of diagnosis onwards.

For many people, survivor is a strong and positive word. Other people do not like being labelled and prefer to look towards a future that is not focused on cancer.

You may see yourself as a survivor as soon as you are diagnosed with cancer, when active treatment stops or when there are no more signs of cancer in the body.

Or you may find it difficult to relate to the term survivor. Instead, you may think of yourself as someone who has had cancer or is living with cancer.

However you like to refer to yourself, after cancer treatment, you may wonder: what now?

Research has shown that getting information about what to expect after finishing primary cancer treatment can help you prepare for life after cancer. This is known as the survivorship phase.

What is survivorship care?

Living with advanced cancer

Finding a new normal

When treatment ends, you may expect that life will soon return to normal. Or you may see the diagnosis as an opportunity to make changes to your life.

Over time, cancer survivors often find a new way of living. This process is commonly called finding a new normal and it may take months or years.

A life-changing experience

Tips for adjusting to life after treatment

Busting myths about the end of treatment

“After my treatment, a psychologist explained that it’s common to feel like you’ve had the rug pulled out from underneath you. It’s also common to question your view of the world and your beliefs. Knowing that, and how normal it is, helped tremendously.” David

Understanding your feelings

While most people adapt well over time to life after cancer treatment, many people experience ongoing fears or concerns. You may find you need a lot of support with how you're feeling.

Common reactions to finishing treatment

Recognising your feelings

 

Feeling down or depressed

It is common to feel low or depressed after treatment ends. Cancer survivors often experience worry or periods of feeling down for months or even years after treatment.

Cancer survivors may feel sad or depressed because of the changes that cancer has caused, fear that the cancer will come back or worries about the future.

Many people feel disconnected from their life before cancer. Others wonder if they will be able to work again and whether their family will cope if they can’t earn enough money.

Sometimes you may feel down for no particular reason. Support for cancer survivors from family and friends, other survivors or health professionals may help you manage these periods.

Contact cancer support

Warning signs of depression

Getting help with depression

How to manage your mood

Fear of cancer coming back

It is common to feel anxious or frightened about the cancer coming back (recurrence). Most cancer survivors are likely to experience this fear to some degree, and it may come and go for many years. You can learn ways of managing cancer fears.

Worrying about recurrence may affect your physical wellbeing, as well as your ability to enjoy life and make plans for the future. Some survivors describe it as a dark cloud or a shadow over their life.

Over time, this fear usually fades, but it can return at certain times, such as:

  • before follow-up appointments, tests and scans
  • special occasions, such as birthdays or holidays
  • anniversaries of the date you were diagnosed, had surgery or finished treatment
  • when other people are diagnosed with cancer
  • when you are feeling unwell or have symptoms similar to those when you were first diagnosed
  • the death of a friend or family member
  • passing by the hospital where you had treatment, or visiting someone in the same hospital
  • hearing media reports about cancer, new treatments and celebrities with cancer
  • seeing cancer-related fundraising campaigns or advertisements.

Ways to manage the fear of recurrence

Will the cancer come back?

Survival statistics

How accurate are the statistics?

Fear of getting a different type of cancer

Living with advanced cancer

Checking signs of a new cancer

Take part in cancer screening

“It helps to focus on what is happening now, what is actually known – not all the possibilities. One step at a time.” Jane

Join a clinical trial

Doctors and other health professionals conduct clinical trials to look at ways to improve the care and quality of life of cancer survivors. Areas studied include:

  • how to best support the mental health of cancer survivors and deal with the fear of recurrence
  • wellbeing and healthy lifestyle programs for survivors
  • how to best treat common side effects such as fatigue, early menopause and lymphoedema
  • understanding more about the causes of common side effects
  • improving follow-up care for survivors.

You may want to consider joining a clinical trial when your cancer treatment finishes. Over the years, clinical trials have improved treatments and led to better outcomes for cancer survivors.

You may find it helpful to talk to your specialist, treatment team or GP, or to get a second opinion. If you decide to take part in a clinical trial, you can withdraw at any time. 

Learn more

Living Well After Cancer

Download our Living Well After Cancer booklet to learn more.

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Questions about cancer?

Call or email our experienced cancer nurses for information and support.

Contact a cancer nurse