Forgotten cancers

Our Forgotten Cancers Program refers to a program of research that aims to identify genetic and lifestyle-related factors that contribute to the development of less common and low survival cancers. A challenge of undertaking research in this area is that, by definition, these cases occur less frequently. It can take a substantial period of time to recruit enough cases to undertake the required research. It is recognised that gains in understanding the causes of these cancers is most likely to be made by large, international collaborative work using data pooled across several studies. We are well placed to contribute to these pooled, national and international collaborative efforts by contributing cases identified in the MCCS.  

In addition, we have recruited to several case-control family studies on less common cancers that have finished recruitment and are available for analysis.

  • Forgotten Cancers Project (FCP): recruited 2,396 cases with non-Hodgkin lymphoma, leukaemia, multiple myeloma, kidney, bladder, stomach, brain, liver, oesophageal, pancreatic, endometrial/uterine, thyroid, gallbladder, small intestine, or bone cancer.
  • Consortium for the Investigation of Renal Malignancies (CONFIRM): renal cell carcinoma study
  • Epidemiology of Multiple Myeloma in Australia (EMMA): multiple myeloma study
  • Lymphoma, Lifestyle, Environment and Family (LEAF): follicular lymphoma study led by our close collaborator Professor Claire Vajdic (University of New South Wales).
  • Australian Genomics and Clinical Outcomes of Glioma (AGOG): glioma study led by our close collaborator Professor Claire Vajdic (University of New South Wales).

Updates on our Forgotten Cancers Program

RESoURCES Program 2024 Newsletter

RESoURCES Program 2024 Newsletter (including CONFIRM content)

RESoURCES Program 2022 Newsletter (including CONFIRM content)

RESoURCES Program 2021 Newsletter (including CONFIRM content)

CONFIRM 2014 Newsletter  

CONFIRM 2013 Newsletter